Little Man Heart Update

I thought I'd post a quick update on how little man's hospital appointment went on Wednesday when he went for an echocardiogram.

Firstly, everything was fine. His heart is fine. The issue is, with him being stretchy - with the Ehlers Danlos Syndrome, it's possible heart valves can be a little stretchy so not work as well. He doesn't have this issue, though they did say it is likely they will check him again at some point in the future.

Secondly, little man was really good about the whole thing. He loved seeing his heart on the screen and the blood flowing through it in blue and red and he loved hearing it beat. He listened intently as he was told that the animal with the longest pointiest heart is the giraffe with a three foot long heart.

Below is a picture of little mans actual heart.

Little Mans Echocardiogram

Following on from our Ehlers Danlos Syndrome diagnosis last month, little man and I have had various referrals to multiple hospitals for tests and support. The first of these is Wednesday when little man goes for an echocardiogram.

At first the prospect of this upset him. He said he would close his eyes as he didn't want to see inside his body. After explaining how cool it would be and showing him an old ultrasound photo of himself he seemed happier with the idea. (he's a little scientist in the making).

He's ok. Did I say I was ok? Nope. Not very ok. It's my little man and they're looking at his heart. I'm his mum though, it's my job to worry. If I don't worry I'm not doing my job properly, right?

I know it's just precautionary. They do this for everyone with this diagnosis. The odds are good that he won't have a problem, but then I wonder what the odds were we'd have this crappy genetic thingy anyway.

Once it's done I will be fine. There's just one problem though. I don't know when we get the results or who we get them from. The referring consultant was from the diagnostic clinic and they don't do follow ups. I hate waiting as well. I just want to know.

Once this is out the way I will wind back the neurotic mother routine.