tag:blogger.com,1999:blog-4795778813532831447.post2568039406305926880..comments2023-10-03T14:26:14.203+01:00Comments on Life in Clarity: Ehlers-Danlos SyndromeRebecca Bradleyhttp://www.blogger.com/profile/10194524230109997420noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-4795778813532831447.post-3514398582766575762010-08-21T18:29:31.174+01:002010-08-21T18:29:31.174+01:00I'm glad that you managed to get a diagnosis. ...I'm glad that you managed to get a diagnosis. It doesn't seem to be an easy thing to do and it appears a very misunderstood disorder. It's also good that your son's doctor is on board with it all. It's not easy when it's our children is it. Had he had health issues for a long period of time? What type are you living with?Janehttps://www.blogger.com/profile/00554170837240673703noreply@blogger.comtag:blogger.com,1999:blog-4795778813532831447.post-61330202059646843212010-08-19T02:47:48.613+01:002010-08-19T02:47:48.613+01:00We just found out last November that our 18 year o...We just found out last November that our 18 year old son has EDS. I have been trying to figure out for years why he was having so many health issues. Believe me, once you get the diagnose it will be a blessing because now you will know for sure. My sons doctors now will listen when I tell them how much pain he is in and they try to help instead of just ignoring us.Unknownhttps://www.blogger.com/profile/12000359062213660953noreply@blogger.com